Historically, those with hemophilia and other bleeding disorders did not live to adulthood. Today the treatment of bleeding disorders has advanced to the point that those affected are expected to live a normal life expectancy. This is great news. One of the biggest challenges today, however, is that adults are experiencing greater medical concerns from co-morbidities associated with aging. Most adults have learned how to manage the day-to-day issues with their bleeding disorder, but complications with other health conditions related to aging remain a significant area of concern. The other diagnoses such as cardiovascular disease, high blood pressure, diabetes, etc that we may be at risk for as we age can be very complicated by having a bleeding disorder. Having a medical provider that can manage all of your medical care, including your bleeding disorder, and also understands, treats and connects with other specialists is critical for your health and wellness as you age
We provide concierge level care without the cost. We empower our patients to take control over their healthcare and strive for wellness as they define it for themselves. We are a non-profit organization dedicated to serving those with bleeding disorders. All of our revenues are reinvested back to the bleeding disorder community to provide:
- Medical, psychosocial, and cultural services
- Educational programs
- Financial Assistance
- Camp programs
- Resources
- Wellness programs
- Preventative programs
- Home healthcare services
- Outreach to medical providers, school nurses, caregivers
- Awareness to general public
- Advocacy efforts for access to healthcare
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